Pages that link to "Q36161109"

The following pages link to A national profile of health care and family impacts of children with muscular dystrophy and special health care needs in the United States (Q36161109):

Displaying 9 items.

• Use of state administrative data sources to study adolescents and young adults with rare conditions (Q30836787) ‎ (← links)
• Using Administrative Data to Ascertain True Cases of Muscular Dystrophy: Rare Disease Surveillance (Q31154467) ‎ (← links)
• Psychological and practical difficulties among parents and healthy siblings of children with Duchenne vs. Becker muscular dystrophy: an Italian comparative study (Q35206606) ‎ (← links)
• Burden, professional support, and social network in families of children and young adults with muscular dystrophies. (Q37269549) ‎ (← links)
• "I have got something positive out of this situation": psychological benefits of caregiving in relatives of young people with muscular dystrophy. (Q37491401) ‎ (← links)
• Family context in muscular dystrophies: psychosocial aspects and social integration (Q37690588) ‎ (← links)
• Caregiver preferences for emerging duchenne muscular dystrophy treatments: a comparison of best-worst scaling and conjoint analysis (Q39071862) ‎ (← links)
• Changes in care coordination and health insurance in the population of US children with muscular dystrophy, 2005-2006 and 2009-2010 (Q64127616) ‎ (← links)
• 30-day all-cause readmission rates among a cohort of individuals with rare conditions (Q64136337) ‎ (← links)