Abstract
TikTok is a social media platform that can educate users about dermatology, but this longitudinal analysis of skin of color–related TikTok hashtags from 2021 to 2022 suggests that nondermatologist influencers continue to dominate content creation, highlighting the need for more participation from board-certified dermatologists to actively counter misinformation and address potential disparities in skin-of-color health care.
JMIR Dermatol 2024;7:e50408doi:10.2196/50408
Keywords
Introduction
Health care providers can use social media platforms such as TikTok to communicate with and educate users globally. Rapid dynamic sharing of content can be personalized and adapted to user preferences on TikTok through artificial intelligence–enabled algorithms and the “For You” feed [
], and users can publicly interact with and amplify trending videos by posting side-by-side “duets.” New features have continued to grow user engagement and personalization such that TikTok became the most popular platform by daily time spent in 2022 [ ]. However, previous studies have established that nondermatologist influencers are prominent creators of dermatology-focused TikTok content, potentially disseminating dangerous misinformation [ ]. Nevertheless, social media resources are particularly important to patients with skin of color (SoC), as their health care providers may be unfamiliar with ethnic skin and hair [ ]. Given the fast-evolving nature of social media, we conducted a longitudinal study to build upon previous work [ ], examine SoC-related hashtags on TikTok from 2021 to 2022, characterize the content of popular posts, and discuss their emerging impact on SoC dermatology.Methods
Overview
We compiled 61 SoC-related hashtags from multiple reputable sources, including SoC journal literature; SoC-focused, peer-reviewed social media research; and the Skin of Color Society [
, , ]. Each hashtag was searched on TikTok in August 2022 and compared to our results from 2021 [ ]. To mitigate possible algorithmic bias, a new TikTok account was created to conduct all hashtag searches within 24 hours. Each SoC-related hashtag’s popularity by total related post views was examined using TokAudit.io. The top-viewed and top-liked posts for each hashtag were identified, along with their sources, types of content, and levels of engagement (views, likes, and comments). Content sources included self-identified US board-certified dermatologists, estheticians, non-US physicians, other health care providers, patients, and influencers. Inclusion criteria required self-identification in the user’s TikTok profile or within the post, and posts lacking content relevant to the searched hashtag were excluded. Two independent raters with medical education and dermatology experience categorized each post’s content: “educational” if clearly disseminating medical information, “promotional” if advertising a service or product, and “personal” for all other content, with discrepancies resolved through consensus meetings.Ethical Considerations
All research was conducted in compliance with regulations for the protection of human subjects under 45 CFR 46.104(d)(4), utilizing existing publicly available data without requiring additional contact or permissions from content creators [
].Results
Before consensus meetings, content categorizations showed high interrater agreement (Cohen κ=0.785 for top-viewed posts and 0.694 for top-liked posts). Considering our 2021 findings, the top SoC-related hashtags by total related post views in 2022 continued to be #IngrownHair (5.7B views), #HairLoss (3.1B views), #Dandruff (1.9B views), #Vitiligo (1.8B views), and #Hyperpigmentation (1.1B views;
). #SkinofColorDermatology, #BrownSkinMatters, and #PseudofolliculitisBarbae remained among the least popular hashtags with existing posts for both years. Notably, 29% (5/17) of hashtags with no related posts in 2021 garnered new posts in 2022, including #XerosisCutis (219.1K views) and #AcneKeloidalis (5.3K views). Paralleling 2021, only 24% (12/49) of top-viewed and 20% (10/49) of top-liked posts ( ) were from board-certified dermatologists, and all contained educational content. Non-US dermatologists and physicians and other providers generated 24% (12/49) of top-viewed and 20% (10/49) of top-liked posts. Estheticians created 22% (11/49) of top-viewed and 20% (10/49) of top-liked posts, mostly promotional content. The remainder comprised promotional and personal posts from influencers and patients. Among available top-viewed content in 2022, #IngrownHair retrieved the most-viewed post (77.8M views, board-certified dermatologist, educational), followed by #HidradenitisSuppurativa (77.6M views, esthetician, promotional) and #Dandruff (46.5M views, influencer, personal). The highest user engagement was driven by personal patient videos of #Vitiligo (10.7M likes and 118K comments) and #HairLoss (6.4M likes and 71.9K comments).Content category and skin-of-color TikTok hashtag | Top-viewed post | Total views of hashtagged posts, n | ||||
Source | Views , n | Likes , n | Comments , n | Non-English language | ||
Educational posts (n=16) | ||||||
Board-certified dermatologist | 77,800,000 | 5,300,000 | 14,100 | 5,700,000,000 | ||
Board-certified dermatologist | 20,000,000 | 1,100,000 | 16,000 | 689,400,000 | ||
Board-certified dermatologist | 11,800,000 | 490,000 | 3184 | 70,700,000 | ||
Board-certified dermatologist | 10,300,000 | 988,900 | 9018 | 56,000,000 | ||
Board-certified dermatologist | 9,100,000 | 373,500 | 4004 | 46,800,000 | ||
Board-certified dermatologist | 4,500,000 | 292,500 | 2007 | 138,000,000 | ||
Board-certified dermatologist | 4,500,000 | 111,400 | 1918 | 11,300,000 | ||
Board-certified dermatologist | 3,200,000 | 14,500 | 257 | 7,100,000 | ||
Board-certified dermatologist | 2,400,000 | 80,800 | 694 | 72,300,000 | ||
Non-US physician | 1,300,000 | 46,500 | 836 | ✓ | 14,300,000 | |
Board-certified dermatologist | 1,100,000 | 110,400 | 1692 | 3,200,000 | ||
Board-certified dermatologist | 305,500 | 8532 | 180 | 503,100 | ||
Non-US dermatologist | 193,400 | 2655 | 47 | ✓ | 219,100 | |
Board-certified dermatologist | 58,300 | 232 | 5 | 59,300 | ||
Non-US physician | 8171 | 131 | 6 | ✓ | 30,100 | |
Non-US physician | 5340 | 72 | 0 | ✓ | 5355 | |
Promotional posts (n=17) | ||||||
Esthetician | 77,600,000 | 1,300,000 | 9391 | 366,000,000 | ||
Non-US physician | 28,400,000 | 1,100,000 | 20,500 | ✓ | 621,300,000 | |
Esthetician | 17,600,000 | 1,300,000 | 3519 | 1,100,000,000 | ||
Esthetician | 17,400,000 | 442,500 | 7534 | 106,300,000 | ||
Esthetician | 17,200,000 | 954,200 | 3544 | 307,400,000 | ||
Influencer | 15,400,000 | 2,900,000 | 3034 | 1,800,000,000 | ||
Influencer | 14,500,000 | 3,000,000 | 8164 | 135,400,000 | ||
Patient | 12,400,000 | 1,700,000 | 9882 | 802,000,000 | ||
Patient | 7,500,000 | 729,300 | 0 | 34,800,000 | ||
Patient | 5,500,000 | 879,700 | 2604 | 71,300,000 | ||
Esthetician | 733,500 | 72,600 | 450 | 9,700,000 | ||
Esthetician | 445,300 | 59,000 | 755 | 2,100,000 | ||
Non-US dermatologist | 322,500 | 6724 | 123 | 1,000,000 | ||
Other provider (nurse practitioner) | 146,100 | 8311 | 126 | 463,600 | ||
Non-US dermatologist | 37,000 | 1188 | 10 | 1,200,000 | ||
Esthetician | 448 | 3 | 0 | 555 | ||
Esthetician | 14 | 0 | 0 | 130 | ||
Personal posts (n=16) | ||||||
Influencer | 46,500,000 | 3,200,000 | 18,800 | 1,900,000,000 | ||
Patient | 28,900,000 | 6,400,000 | 71,900 | 3,100,000,000 | ||
Patient | 12,600,000 | 751,200 | 20,800 | 199,400,000 | ||
Esthetician | 9,400,000 | 1,600,000 | 1350 | 36,200,000 | ||
Patient | 8,000,000 | 153,700 | 2125 | 66,600,000 | ||
Non-US physician | 3,100,000 | 593,700 | 604 | 14,800,000 | ||
Patient | 3,100,000 | 467,700 | 5416 | 8,200,000 | ||
Non-US physician | 380,900 | 22,200 | 367 | ✓ | 511,300 | |
Esthetician | 215,000 | 15,300 | 355 | 627,300 | ||
Influencer | 164,300 | 35,600 | 177 | ✓ | 8,100,000 | |
Patient | 4103 | 44 | 0 | 5310 | ||
Patient | 1635 | 48 | 9 | ✓ | 1635 | |
Esthetician | 1560 | 30 | 1 | 11,600 | ||
Other provider (veterinarian) | 1126 | 327 | 0 | ✓ | 39,000 | |
Influencer | 840 | 8 | 0 | ✓ | 841 | |
Non-US dermatologist | 722 | 5 | 0 | ✓ | 722 | |
No posts (n=12) | ||||||
— | — | — | — | — | — |
aNot applicable.
Content category and skin-of-color TikTok hashtag | Top-liked post | |||||
Source | Views, n | Likes, n | Comments, n | Non-English Language | Same as the top-viewed post | |
Educational posts (n=13) | ||||||
Board-certified dermatologist | 77,800,000 | 5,300,000 | 14,100 | ✓ | ||
Board-certified dermatologist | 10,300,000 | 988,900 | 9018 | ✓ | ||
Board-certified dermatologist | 11,800,000 | 490,000 | 3184 | ✓ | ||
Board-certified dermatologist | 9,100,000 | 373,500 | 4004 | ✓ | ||
Board-certified dermatologist | 4,500,000 | 111,400 | 1918 | ✓ | ||
Board-certified dermatologist | 1,100,000 | 110,400 | 1692 | ✓ | ||
Board-certified dermatologist | 266,300 | 34,600 | 295 | |||
Board-certified dermatologist | 3,200,000 | 14,500 | 257 | ✓ | ||
Board-certified dermatologist | 305,500 | 8532 | 180 | ✓ | ||
Non-US dermatologist | 193,400 | 2655 | 47 | ✓ | ||
Board-certified dermatologist | 58,300 | 232 | 5 | ✓ | ||
Non-US physician | 8171 | 131 | 6 | ✓ | ||
Non-US physician | 5340 | 72 | 0 | ✓ | ||
Promotional posts (n=19) | ||||||
Influencer | 14,500,000 | 3,000,000 | 8164 | ✓ | ||
Patient | 12,400,000 | 1,700,000 | 9882 | ✓ | ||
Esthetician | 77,600,000 | 1,300,000 | 9391 | ✓ | ||
Patient | 7,100,000 | 1,300,000 | 5677 | |||
Non-US physician | 28,400,000 | 1,100,000 | 20,500 | ✓ | ||
Patient | 5,500,000 | 879,700 | 2604 | ✓ | ||
Esthetician | 5,100,000 | 841,800 | 3951 | |||
Esthetician | 7,200,000 | 523,300 | 1370 | |||
Influencer | 2,000,000 | 352,700 | 2,782 | |||
Esthetician | 2,700,000 | 349,400 | 758 | |||
Influencer | 1,700,000 | 103,500 | 487 | ✓ | ||
Esthetician | 733,500 | 72,600 | 450 | ✓ | ||
Esthetician | 445,300 | 59,000 | 755 | ✓ | ||
Patient | 899,800 | 51,300 | 234 | |||
Other provider (nurse practitioner) | 146,100 | 8311 | 126 | ✓ | ||
Non-US dermatologist | 37,000 | 1188 | 10 | ✓ | ||
Esthetician | 1541 | 72 | 0 | |||
Influencer | 106 | 14 | 0 | |||
Esthetician | 14 | 0 | 0 | ✓ | ||
Personal posts (n=17) | ||||||
Patient | 6,900,000 | 10,700,000 | 118,000 | |||
Patient | 28,900,000 | 6,400,000 | 71,900 | ✓ | ||
Patient | 15,000,000 | 2,000,000 | 21,200 | |||
Influencer | 8,000,000 | 1,700,000 | 10,100 | |||
Esthetician | 9,400,000 | 1,600,000 | 1350 | ✓ | ||
Patient | 12,600,000 | 751,200 | 20,800 | ✓ | ||
Non-US physician | 3,100,000 | 593,700 | 604 | ✓ | ||
Patient | 3,100,000 | 467,700 | 5416 | ✓ | ||
Patient | 7,700,000 | 396,100 | 2470 | ✓ | ||
Influencer | 164,300 | 35,600 | 177 | ✓ | ||
Non-US physician | 380,900 | 22,200 | 367 | ✓ | ||
Esthetician | 215,000 | 15,300 | 355 | ✓ | ||
Other provider (veterinarian) | 1126 | 327 | 0 | ✓ | ||
Influencer | 341 | 55 | 9 | |||
Patient | 1635 | 48 | 9 | ✓ | ||
Influencer | 840 | 8 | 0 | ✓ | ||
Non-US dermatologist | 722 | 5 | 0 | ✓ | ||
No posts (n=12) | ||||||
— | — | — | — | — | — |
aNot applicable.
Discussion
Hashtags for hair and pigmentary disorders common in SoC such as #HidradenitisSuppurativa and #Hyperpigmentation remained popular in 2022, reflecting emerging societal attention toward sociocultural diversity and health disparities [
], along with growing SoC representation among social media content creators [ ]. However, our study was limited by content that was not strictly SoC related but listed multiple hashtags, non–English-language posts, and a need for in-depth qualitative content analysis in future work. The lack of provider credential verification also posed barriers. Nevertheless, self-identified, board-certified dermatologists posted educational content as expected, garnering views and engagement comparable to promotional and personal posts from other sources, but they continued to comprise a small fraction of popular TikTok content generators. We reiterate our call for additional dermatologist engagement, sharing compelling patient stories while dispelling health misinformation. TikTok’s unique features could be leveraged to further boost influence.Conflicts of Interest
RPD is the Editor-in-Chief of the JMIR Dermatology, receives editorial stipends and meeting expense reimbursement from JMIR Dermatology, and receives royalties from UpToDate.
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Abbreviations
SoC: skin of color |
Edited by Sherry Pagoto, William Guo; submitted 29.06.23; peer-reviewed by Hassan Zamir, Maha Gasmi, Shankar Ganesh; final revised version received 13.09.24; accepted 17.09.24; published 18.10.24.
Copyright© Jeemin Kang, Mindy D Szeto, Lois Suh, Jadesola T Olayinka, Robert P Dellavalle. Originally published in JMIR Dermatology (http://derma.jmir.org), 18.10.2024.
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