Rare diseases: matching wheelchair users with rare metabolic, neuromuscular or neurological disorders to electric powered indoor/outdoor wheelchairs (EPIOCs) (Q37051511)

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scientific article published on 30 December 2015

Language	Label	Description	Also known as
English	Rare diseases: matching wheelchair users with rare metabolic, neuromuscular or neurological disorders to electric powered indoor/outdoor wheelchairs (EPIOCs)	scientific article published on 30 December 2015

Statements

scholarly article

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

Rare diseases: matching wheelchair users with rare metabolic, neuromuscular or neurological disorders to electric powered indoor/outdoor wheelchairs (EPIOCs) (English)

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

0 references

1 reference

based on heuristic

inferred from title

Lorraine De Souza

1

object named as

Lorraine H De Souza

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

author name string

Andrew O Frank

2

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

publication date

30 December 2015

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

Disability and Rehabilitation

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

38

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Europe PubMed Central

PMC publication ID

17 August 2017

16

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

1547-1556

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

Problematic clinical features of powered wheelchair users with severely disabling multiple sclerosis

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Burden of disease in patients with Morquio A syndrome: results from an international patient-reported outcomes survey

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Behavioral abnormalities in progressive supranuclear palsy

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Clinical features of Friedreich's ataxia: classical and atypical phenotypes.

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Out-of-school lives of physically disabled children and young people in the United Kingdom: a qualitative literature review

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Key focal areas for bridging the fields of aging and disability: findings from the growing older with a disability conference

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Genetic abnormalities in fibrodysplasia ossificans progressiva

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Wheeled mobility (wheelchair) service delivery: scope of the evidence

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If you build a rare disease registry, will they enroll and will they use it? Methods and data from the National Registry of Myotonic Dystrophy (DM) and Facioscapulohumeral Muscular Dystrophy (FSHD).

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The pain experiences of powered wheelchair users

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Electric powered wheelchairs for those with muscular dystrophy: problems of posture, pain and deformity

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McCune-Albright syndrome

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Friedreich's ataxia and scoliosis: the experience at two institutions

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Neurophysiological strategies for the diagnosis of disorders of the neuromuscular junction in children

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Infantile systemic hyalinosis: Case report and review of the literature

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Central core disease

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Ethnic variation in the incidence of ALS: a systematic review

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Epidemiological evidence on multiple system atrophy

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Living with a chronic deteriorating disease: the trajectory with muscular dystrophy over ten years

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The management of motor neurone disease.

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Current insights into familial spastic paraparesis: new advances in an old disease

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Prevalence of lysosomal storage disorders

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The natural history of degenerative ataxia: a retrospective study in 466 patients

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Age of onset, sex, and cardiomyopathy as predictors of disability and survival in Friedreich's disease: a retrospective study on 119 patients.

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EUROPLAN: a project to support the development of national plans on rare diseases in Europe

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4 September 2018

Advances in motor neurone disease.

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4 September 2018

Recipients of electric-powered indoor/outdoor wheelchairs provided by a national health service: a cross-sectional study

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4926775

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Clinical epidemiology of skeletal dysplasias in South America.

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The epidemiology of progressive supranuclear palsy

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4926775

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Older adults' use of, and satisfaction with, electric powered indoor/outdoor wheelchairs.

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Changes in the quality of life in severely disabled people following provision of powered indoor/outdoor chairs.

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20 October 2018

Spinocerebellar ataxias in the Netherlands: prevalence and age at onset variance analysis.

1 reference

https://api.crossref.org/works/10.3109%2F09638288.2015.1106599

21 January 2018

Hormonal changes in menopause: do they contribute to a 'midlife hair crisis' in women?

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21 January 2018

Winchester syndrome

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21 January 2018

Classical Friedreich’s Ataxia and Its Genotype

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21 January 2018

Mobility challenges and solutions for fibrodysplasia ossificans progressiva

1 reference

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12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Introduction of a new NHS electric-powered indoor/outdoor chair (EPIOC) service: benefits, risks and implications for prescribers

1 reference

https://pubmed.ncbi.nlm.nih.gov/26714619

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Motor neurone disease: practical update ignores rehabilitative approaches--particularly assistive technology.

1 reference

https://pubmed.ncbi.nlm.nih.gov/26714619

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

[Global strategy for rare and intractable diseases]

1 reference

https://pubmed.ncbi.nlm.nih.gov/26714619

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Friedreich ataxia

1 reference

https://pubmed.ncbi.nlm.nih.gov/26714619

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Natural history of muscle weakness in Friedreich's Ataxia and its relation to loss of ambulation

1 reference

https://pubmed.ncbi.nlm.nih.gov/26714619

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The clinical spectrum of Friedreich's ataxia in German families showing linkage to the FRDA locus on chromosome 9

1 reference

https://pubmed.ncbi.nlm.nih.gov/26714619

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.3109/09638288.2015.1106599

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

PMC publication ID

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

PubMed publication ID

1 reference

Europe PubMed Central

PMC publication ID

17 August 2017

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