Participation and quality of life in children with Duchenne muscular dystrophy using the International Classification of Functioning, Disability, and Health (Q39623233)

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scientific article published on 22 May 2012

Language	Label	Description	Also known as
English	Participation and quality of life in children with Duchenne muscular dystrophy using the International Classification of Functioning, Disability, and Health	scientific article published on 22 May 2012

Statements

scholarly article

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

Participation and quality of life in children with Duchenne muscular dystrophy using the International Classification of Functioning, Disability, and Health (English)

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

0 references

quality of life

1 reference

based on heuristic

inferred from title

Duchenne muscular dystrophy

1 reference

based on heuristic

inferred from title

author name string

Roxanna M Bendixen

1

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

Claudia Senesac

2

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

Donovan J Lott

3

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

Krista Vandenborne

4

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

language of work or name

1 reference

based on heuristic

inferred from title

publication date

22 May 2012

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

Health and Quality of Life Outcomes

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

10

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

43

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

Change in natural history of Duchenne muscular dystrophy with long-term corticosteroid treatment: implications for management

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Relationship between clinical outcome measures and parent proxy reports of health-related quality of life in ambulatory children with Duchenne muscular dystrophy

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

New clinical end points in rehabilitation medicine: tools for measuring quality of life

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Quality of life and participation

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

The linkage between pediatric quality of life and health conditions: establishing clinically meaningful cutoff scores for the PedsQL

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Physical activity in the United States measured by accelerometer

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

New therapies for Duchenne muscular dystrophy: challenges, prospects and clinical trials.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL 4.0 Generic Core Scales

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Living with muscular dystrophy: health related quality of life consequences for children and adults

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

The role of corticosteroids in muscular dystrophy: a critical appraisal

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Social behavior problems in boys with Duchenne muscular dystrophy

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Pathophysiology of duchenne muscular dystrophy: current hypotheses

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

The role of free radicals in the pathophysiology of muscular dystrophy

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Measurement in Duchenne muscular dystrophy: considerations in the development of a neuromuscular assessment tool

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

The measurement of health-related quality of life (QOL) in paediatric clinical trials: a systematic review

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Evidence that school-age children can self-report on their health

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Physical activity, health impairments, and disability in neuromuscular disease

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

The measurement of quality of life in children: past and future perspectives

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

A review of measures of quality of life for children with chronic illness

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Measures of social outcomes in disability research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Dystrophin: the protein product of the Duchenne muscular dystrophy locus

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Duchenne muscular dystrophy--parental perceptions

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

14 September 2017

Profiles of neuromuscular diseases. Duchenne muscular dystrophy.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

17 June 2018

The psychosocial impact of a progressive physical handicap and terminal illness (Duchenne muscular dystrophy) on adolescents and their families.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

17 June 2018

Impact of impairment on activity patterns of children.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

17 June 2018

The impact of Duchenne muscular dystrophy on families

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

17 June 2018

Predicting life satisfaction among adults with physical disabilities

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

17 June 2018

Trends by age in youth physical activity: Youth Media Campaign Longitudinal Survey.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Quality of life in Duchenne muscular dystrophy: the subjective impact on children and parents

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

The relationship between motor performance and peer relations in 9- to 12-year-old children.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Health-related quality of life in boys with Duchenne muscular dystrophy: agreement between parents and their sons

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

The 6-minute walk test as a new outcome measure in Duchenne muscular dystrophy.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Successful participation: the lived experience among children with disabilities

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Association of environmental factors with levels of home and community participation in an adult rehabilitation cohort.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Patterns of participation in recreational and leisure activities among children with complex physical disabilities

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Beyond function: predicting participation in a rehabilitation cohort.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Diagnosis to function: classification for children and youths.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Quality of life, physical disability, and respiratory impairment in Duchenne muscular dystrophy

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Parents' perspectives on coping with Duchenne muscular dystrophy.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Use of step activity monitoring for continuous physical activity assessment in boys with Duchenne muscular dystrophy

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Physical activity levels and patterns of 9- and 15-yr-old European children

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Agreement between adolescent self-report and parent reports of health and well-being: results of an epidemiological study

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Elementary school-aged children's reports of their health: a cognitive interviewing study.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Social functioning in children with a chronic illness.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

The PedsQL: measurement model for the pediatric quality of life inventory

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

Quality of life. Issues for persons with neuromuscular diseases.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

21 August 2018

FACTORS RELATING TO CARER BURDEN FOR FAMILIES OF PERSONS WITH MUSCULAR DYSTROPHY

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3358238

2 December 2018

Measuring children's participation in recreation and leisure activities: construct validation of the CAPE and PAC

1 reference

https://pubmed.ncbi.nlm.nih.gov/22545870

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Duchenne muscular dystrophy: quality of life among 95 patients evaluated using the Life Satisfaction Index for Adolescents

1 reference

https://pubmed.ncbi.nlm.nih.gov/22545870

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Pain and activity limitations in children with Duchenne or Becker muscular dystrophy

1 reference

https://pubmed.ncbi.nlm.nih.gov/22545870

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Activities of daily living and quality of life in persons with muscular dystrophy

1 reference

https://pubmed.ncbi.nlm.nih.gov/22545870

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Duchenne muscular dystrophy

1 reference

https://pubmed.ncbi.nlm.nih.gov/22545870

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Participation in childhood

1 reference

https://pubmed.ncbi.nlm.nih.gov/22545870

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Clinical trial in Duchenne dystrophy. I. The design of the protocol

1 reference

https://pubmed.ncbi.nlm.nih.gov/22545870

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Quantitation of muscle function in children: a prospective study in Duchenne muscular dystrophy

1 reference

https://pubmed.ncbi.nlm.nih.gov/22545870

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Functional ability and muscle force in healthy children and ambulant Duchenne muscular dystrophy patients

1 reference

https://pubmed.ncbi.nlm.nih.gov/22545870

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1186/1477-7525-10-43

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

Dimensions Publication ID

0 references

PMC publication ID

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

PubMed publication ID

1 reference

Europe PubMed Central

PMC publication ID

13 September 2017

ResearchGate publication ID

0 references

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