"Getting ready for the adult world": how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being (Q64086577)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30940178%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

title

"Getting ready for the adult world": how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being (English)

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30940178%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

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spinal muscular atrophy

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Hamish W Y Wan

1

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30940178%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

Kate A Carey

series ordinal

2

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30940178%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

Arlene D'Silva

series ordinal

3

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30940178%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

language of work or name

English

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publication date

2 April 2019

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30940178%20AND%20SRC:MED&resulttype=core&format=json

Orphanet Journal of Rare Diseases

1 May 2020

published in

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30940178%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

volume

14

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30940178%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

issue

1

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30940178%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

page(s)

74

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Creative Commons Attribution 4.0 International

1 May 2020

copyright license

start time

2 April 2019

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April 2022 Public Data File from Crossref

copyright status

copyrighted

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cites work

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Transition process of patients with type 1 diabetes (T1DM) from paediatric to the adult health care service: a hospital-based approach

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Understanding the experiences and needs of individuals with Spinal Muscular Atrophy and their parents: a qualitative study

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Experience based co-design reduces formal complaints on an acute mental health ward

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What Matters Most: A Perspective From Adult Spinal Muscular Atrophy Patients

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Psychoeducational Intervention to Reduce Fear of Cancer Recurrence in People at High Risk of Developing Another Primary Melanoma: Results of a Randomized Controlled Trial

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Disease impact on general well-being and therapeutic expectations of European Type II and Type III spinal muscular atrophy patients

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A qualitative study of perceptions of meaningful change in spinal muscular atrophy

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Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.

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Health care use during cancer survivorship: Review of 5 years of evidence

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Fear of cancer recurrence: A qualitative systematic review and meta-synthesis of patients' experiences

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12 December 2020

10.1186/S13023-019-1052-2

Identifiers

DOI

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30940178%20AND%20SRC:MED&resulttype=core&format=json

Dimensions Publication ID

1 May 2020

1 reference

9 September 2019

https://scigraph.springernature.com/pub.10.1186/s13023-019-1052-2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:30940178%20AND%20SRC:MED&resulttype=core&format=json

1 May 2020

PubMed publication ID

30940178

1 reference